5 Years Ago
Five Years Ago tomorrow... we lost her.
I miss her like crazy... and hope she flies with me tomorrow!
My Favorite Place
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Apparently the dragonfly is not afraid of my scar!
Just Me
This blog began as a way for me to record my journey with PVNS, its struggles as well as many moments of success.The posts have slowly been moving away from PVNS as has my life, but PVNS(pigmented villonodular synovitis) is still a part of my life....I hope others can read my experiences and feel less isolated. My surgery was July 17th 2007, and the posts after that date include pics of the incisions/scars. Best of luck to other PVNS patients/survivors!
Dragonfly
Apparently the dragonfly is not afraid of my scar!
Location of Blog Viewers
Is this cool or what? I will be able to see where people are seeing my blog. I am excited about that!
Selfie
Just Me
About Me
- TallGal
- Southern part of the state, Maine, United States
- I am a thirty something woman living life and wanting to talk about it. I have a rare condition,PVNS, in my left knee and wanted to blog about it. I have amazing people in my life and love to spend time with them. I like doing a lot of things and love to laugh. I have some great feline friends who are pictured below. If you also have PVNS, I would like to hear from you. Email me at IhavePVNS@aol.com Not all of my blogs are focused on PVNS, but know that it effects me every day!
Other Folks with PVNS and their email addresses
- Karen - she even started her own blog about PVNS, but doesn't feel the need to keep it up, but some good pics there! her blog: http://klefever.blogspot.com
- Cheri - itscherij@yahoo.com, wants us to know that returning to normalcy is possible
Some of my favorite sites... some for fun some for PVNS
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