Seven years ago I was enjoying dinner with Mom, Dad, Sis, Sara, and Phil... in Boston... the night before my surgery for PVNS... it has been quite a journey... so much has happened since that time... I am lucky and grateful that my pvns has not returned. Others are not so lucky.
Here is a link about a brave woman who battled PVNS and took control of her own fate:
Brave woman faces PVNS
And another article about a man with PVNS who made a similar choice...
PVNS is NO Joke!
I am lucky that my surgery was successful... but I continue to think of those who battle every minute of every day...
Here is a picture of my leg a few days after surgery... hopeful I do not every have to experience that again!
Posted by TallGal at 10:12 PM
I got an email from a woman in California looking to connect with PVNS patients near Los Angeles.
Here is the email:
Posted by TallGal at 2:45 PM
After that adventure we explored more of Mt. Hood’s surroundings and then drove back to Portland via the Gorge… it was beautiful… We chilled at the house for a while before Jane got home and we were going to sail… I think of all the things that we had wanted to do while I was there, sailing was the most important to Mike… and I am sad to say that the wind was not working with us… either there was no wind.. or.. in tonight’s case.. there was too much… so we had dinner at his marina and headed back to the house… He drove me to the airport and was able to sit with me for a while before my plane took off… it was nice… though I was sad because it was time to say good bye for this visit anyway… and I will miss him…
Posted by TallGal at 10:41 PM
Oregon is beautiful! I may have mentioned that, but it is true!
Yesterday Michael and I drove to the coast, went up through part of Washington state then into Astoria in Oregon... we went up into what is called Astor Column... I have a few pictures, but in the meantime here is a link about it.
I found this picture online at http://seattletimes.com/ABPub/2011/05/06/2014981023.jpg
It shows how narrow the spiral staircase is... and how tricky it would be to have people going up and coming down at the same time...
After that we stopped at the gift shop... I wanted something to commemorate my near death experience... and found a magnet as well as a postcard thingy with the facts about said tower... It is good to be alive! I am glad I went to the top... It challenged me a bit... and I survived... but also erased any small shred of doubt when it came to being certain that bungee jumping and skydiving are NOT in my future!
From there we drove to a state park... and I didn't take any pics with my phone...we stopped at a lookout place over a jetty and got to see some of the beach coast... beautiful... then we went to the beach and I got my toes into the Pacific ocean! It was beautiful... it was a beach where there is still part of a shipwreck... and while we were there a wedding was going on... the beach was beautiful... the sand is darker than what I am used to, still gorgeous... we walked for a while looking for beach treasures... It was cool to have a moment of realization of how far from home I was... and how glad I was that I came here!
We drove towards a town called Seaside and tok a bit of a detour into Ecola Park... to see amazing views... I of course wanted a selfie with the coastline behind me... and Michael was kind enough to agree... but it was funny... I was trying to get my phone in the right place to take a selfie of us and at first cut off his head... now... Michael is a tall person... around 6'5 or so... and I am 6'6... so as I was struggling to get him in the picture I said something about him being too short for the shot... and snapped the selfie just after I said that and look at the look he gave me! This picture cracks me up!
From there we went into a town called... Seaside... it is a busy town, very touristy and very ... bardwalkish... the beach there is also pretty.. and we found a place to eat...called The Crabby Oyster. It was a good place to eat and to people watch! After Seaside we wet to Cannon Beach... a much smaller town and less busy... we met some of Michael and Jane's friends and then went to the beach... down to haystack rock... which you can see in the picture above... the rock furthest away shaped like... well... a haystack...
Posted by TallGal at 11:00 AM
I am on the West Coast... specifically, in Portland, Oregon, visiting Michael! I am so excited and grateful to be here! It is BEAUTIFUL! The word of the day for yesterday as we drove through the Columbia River Gorge was...LUSH! Everything was so green and beautiful. I took just over 300 pictures in just one day! Michael and his wife have a convertible and it was so much fin to ride through such amazing sights with the top down. Maybe one day I will have to get a convertible! This one has a surprising amount of leg room! I love the forests here... when I think of Oregon and Washington I picture evergreen trees that are tall and skinny, and that's exactly what they are here... and there are so many! Who would think a girl from Maine would be impressed by the amount of trees in another place? But I am! We also drove over into Washington state and looked back across the river at Oregon. It truly is a beautiful place!
I am so happy to be exploring some new terrain... and even more happy to be spending time with a great Friend!
Thanks for Michael and his wife for hosting!
Here are a few pictures:
(Of course there will be more pictures to post...I forgot the cord that goes from my camera to the computer... so, y'all will have to be happy with the pics taken on my cell phone for now!)
Posted by TallGal at 10:55 AM